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Finding a Mesothelioma Support Group
You don’t have to face a mesothelioma diagnosis alone, whether a patient, loved one or caregiver. There are many options for support groups, which offer an array of benefits.
Key Points
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Support groups can be specific to patients, family members or caregivers.
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In-person meetings, online forums or conference calls are common options.
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It can take time to find the right support group for your preferences and needs.
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These groups offer emotional, medical and practical support.
When facing a mesothelioma diagnosis, whether you’re a patient, a family member or close friend, a caregiver or a survivor, it can feel incredibly lonely and as if no one else understands what you are going through. Though patients and their loved ones can turn to each other, sometimes it’s even more beneficial to hear from others in the community going through similar things, like difficulties with treatment or dealing with the mental side effects of a diagnosis. Finding a mesothelioma support group that fits your needs can make a difference in your overall wellbeing.
Benefits of Joining a Support Group
People may seek support for different reasons, and finding a support group can offer a wide array of benefits for anyone’s situation. Interacting in these settings can provide emotional support, medical support and practical support, which can extend into an improved quality of life.
Where to Find a Mesothelioma Support Group
When seeking out a support group, you should consider the type of support you need and the type of topics typically discussed in the prospective groups. For instance, some groups may focus more on the cancer itself, which may not be as beneficial to a caregiver or loved one as it would for a mesothelioma patient. Instead, caregivers may want to seek out a group that consists of other caregivers, who can offer tips and similar experiences, while loved ones will want a community that can also speak to changing roles when dealing with cancer, practical financial advice or every day changes like transport to and from treatments.
As you consider the type of support you might want and begin the process of researching potential support groups, there are several options available for finding the right support group for you.
Cancer Clinics and Local Organizations
When hearing “support group,” most people think of the traditional in-person meetings, where a group gathers around a facilitator and can take turns talking about their experiences. For some, the thought of a support group like this may cause some discomfort at the thought of sharing personal information out loud to strangers. But many still find comfort in making such connections and having face-to-face conversations.
As you look into potential in-person meetings, there are a few avenues to take. Ask your mesothelioma specialist, social worker or other health professionals at your cancer center about their support services. Local organizations like churches and libraries also often hold various types of support groups. Nonprofits may be another option for patient support.
Mesothelioma Support Groups Online
Online support groups can take several forms. It can be a listserv that chats over email, an online mesothelioma forum where you can post questions and chat with other members, a chat room, a Facebook group or a moderated discussion group. Many patients enjoy this structure because they can find the support they need at any time of day or night, and it doesn’t require any specific time commitment. It also allows them to connect to other patients, patient advocates, caregivers or survivors all over the world.
When considering an online support group, it’s important to do your research. Consider who, if anyone, is leading or moderating the forum. Online support groups run through a cancer organization or cancer center will likely be more trustworthy and educational than a smaller group, also providing the latest news and resources in the community. Regardless, patients should only rely on professional medical advice from their doctor, as they understand your individual case.
Conference Calls
Many phone-based support groups are run by national cancer organizations and some cancer centers. These can be a good option for patients who may not be able to find a good local option or are unable to travel for planned support group sessions. Similar to online support groups, this option can allow patients to connect with others experiencing similar situations all around the country.
Like with any support group, be mindful of who is running these conversations to make sure you’re receiving accurate, helpful information. Keep in mind, some of these phone number options may also have a fee involved.