Caring for a Loved One With Mesothelioma

Mesothelioma patients often rely on a loved one as their primary caregiver. There are several aspects individuals should consider when becoming a caregiver.

Mesothelioma patients can need substantial care. Caregiving is often a full-time job with physical and mental requirements. Caregivers need to not only care for the patient but also for themselves.

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Mesothelioma Caregiver Requirements

Mesothelioma patients will work with their medical care team to establish a plan of care. Their needs will often depend on the severity of their condition. Some patients may be able to continue low-intensity activities. Others may need full care.

When caring for a mesothelioma patient, individuals may need to:

• Help the patient with dressing and undressing.
• Assist with meal planning and preparation.
• Ensure the patient takes their prescriptions properly.
• Bring the patient to treatments and follow-up appointments.
• Communicate the patient’s wants and needs to their larger care team.
• Provide emotional support as they deal with their cancer diagnosis and treatment plan.
• Provide physical support during other day-to-day activities.

Patients will likely benefit from a caregiver who exercises compassion, care and patience.

Some cancers, such as mesothelioma, may be aggressive. As a result, the patient may go from fully independent to relying on others for help. This can be jarring for the patient, and exercising kindness may help them adjust to the changes.

Understanding a Mesothelioma Patient’s Wants and Needs

Caregivers should strive to listen to a mesothelioma patient’s wants and needs. Every patient is different. What feels like help to one patient may not be helpful for another. Loved ones should:

• Ask the patient what they want their care to look like.
• Listen to the patient’s hopes and concerns.
• Explain when something isn’t possible or is unsafe.
• Strive to create as much comfort as possible for the patient.

Patients should discuss their care plan with their doctor. A mesothelioma specialist may be able to provide recommendations to prioritize a patient’s desires.

Addressing Personal Needs as a Mesothelioma Caregiver

Caregivers must also take care of themselves. It is easy for a family member to experience burnout when dedicating their time to another.

Loved ones are also dealing with emotions after a diagnosis. They may experience sadness, worry, fear, anger or grief. Caregivers should address their mental and emotional well-being. They may consider joining a caregiver support group. It can be helpful to talk with others going through a similar experience.